Your calendar is coordinated to keep track of appointments for your adult child with special needs. Your to-do list includes researching programs that you’ve heard of or meeting with an advisor to plan financial details. You know that no matter how invested in work, friends, or anything else, you are available if your adult child […]
During a past focus group for Exceptional Lives, we received the following feedback: “If I see a particular diagnosis mentioned, or I don’t see my child’s diagnosis, I assume it’s not for me.” This makes perfect sense. As parents and caregivers, we have a lot of information to sift through; we need to know what […]
Everybody loves to win. Children naturally infuse winning into their day; “First one to the slide gets (fill in the blank)”, “My (fill in the blank) is (better, bigger, stronger) than yours!” I’ll admit, as a mom, I do it too! I almost always regret it, but when the three boys take on sloth-like qualities […]
Last week my son stood up on skates for the first time on his own. I cannot express the intense emotion that swept over me at that moment, but I suspect you know the feeling. Pride, joy, love, glee. It isn’t the skating part that I care about. It is the perseverance and determination. Despite […]
I love the holiday season. But let’s be honest, for every beautiful cookie exchange or flawless school play posted online, there’s a disaster in the kitchen or a meltdown in the car that was not on social media for all to see.
Last month we received a comment from a reader pointing out the all-too-familiar challenge of looking for work while also parenting a child with special needs. In our culture, it is hard to be successful in the working world when you are so needed at home. This really struck a chord with me and I […]
Each new stage in life brings developmental changes and opportunity for growth and learning. It also opens new doors to an ever-changing list of possible therapies or community activities. Development is made up of so many key aspects of ourselves. How do we decide which ones to prioritize over the others?
My child is complex. I don’t mean only in terms of his physical or cognitive function. I mean in terms of his humanity. He is complex because he is a human and we are complex. We have moods, motivations and preferences that guide our behavior. We have family, friends, and community that affect our development. […]