During a season where we are all prone to be a little more stretched than usual, I’ve been trying hard to be present and stay grounded for my children. Mostly I’ve been trying not to lose my calm. Really trying. So hard.
I have thought many times that there should be a parade or at minimum a marching band for solo parents exiting planes or arriving at their road trip destination with their children in tow.
Holidays are a time for family and gratitude. For family members who we see only a few times a year, it can be hard for them to understand our unique experiences as parents of children with disabilities – and it can be easy for them to make judgment on us, our relationships with our […]
Learning about and understanding my son’s diagnosis has changed who we are as individuals, as parents, and as a family. I’m sure it has for you, too. Above all, it has allowed us to strengthen our relationships with each other and with the world in ways that we wouldn’t change.
We all wonder. We wonder about the future and what it holds for us and for our loved ones. We wonder about our careers, our relationships, and our contributions to our community. Some of us wonder about accessibility: As a parent, how do I know if my son will be able to access the […]
Your calendar is coordinated to keep track of appointments for your adult child with special needs. Your to-do list includes researching programs that you’ve heard of or meeting with an advisor to plan financial details. You know that no matter how invested in work, friends, or anything else, you are available if your adult child […]
Everybody loves to win. Children naturally infuse winning into their day; “First one to the slide gets (fill in the blank)”, “My (fill in the blank) is (better, bigger, stronger) than yours!” I’ll admit, as a mom, I do it too! I almost always regret it, but when the three boys take on sloth-like qualities […]
This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]